Say a little prayer.

Tonight at sunset, it will be 11 years since Hannah passed away in my arms. Our sweet girl would be almost a teen.

Yesterday in the car driving home from a playdate, Mimi asked me if doctors know how to fix what happened to Hannah (surely science would be there she thought). Mutation. “A mutation is a change in the DNA sequence of an organism. Mutations can result from errors in DNA replication during cell division.” One small mistake on our seemingly infinite line of DNA.

I suppose the first step is to be able to identify exactly where the mutation occurred. We have this now from the great genetics work of the SCH Research team that identified the spontaneous mutation that caused Hannah’s disease. But like so many others who have faced the dreaded ‘rare disease’ diagnosis, we didn’t have this during Hannah’s lifetime. The second step would be the ability to edit the gene so that the mutation is no longer an issue. Unfortunately for Hannah and the other kiddos with rare diseases, this isn’t yet a treatment option. But we know, like so many cell biology advancements, it is coming.

At sunset tonight, I’ll think of Hannah (as I do everyday when I see a hummingbird, hear a special song, or see the sun rise or set). I’ll also pray for our extraordinary scientists who are working fast on gene therapies that will one day (soon I hope) help other children and their parents who are living with the uncertainty of a diagnosis that they are helpless to heal.

Sweet Hannah, we love and miss you every single day.

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Trip of a Lifetime part 2 – safari and beyond.

It has been so much fun going through my photos and videos of Tanzania. I am in awe of the beauty – landscapes, people, animals, flora. I put together a little video, but it really doesn’t do it justice. Volume on!


https://vimeo.com/797877620

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Trip of a Lifetime – Kilimanjaro Climb

What an incredible journey! I arrived home on Thursday and am in awe that I actually was in Africa last month. I am sorting through more than a thousand photos and videos, but put together this little video with some of my favorite highlights. I’ll recap more later, but here is the extraordinary experience we had climbing Mount Kilimanjaro. You’ll want sound on/volume up!

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In Africa and on our way tomorrow.

I’m here and so excited to be in Africa. I arrived yesterday morning to Arusha, and dove in getting to know my group of 8 and our guide Ben. Arusha is a thriving city of more than 3 million, and showcases the color and vibrancy of the Tanzanian people. We depart tomorrow for the climb. Follow us tomorrow and beyond on the cybercast at www.alpineascents.com/mount-Kilimanjaro-cybercasts

Our group
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Live Cybercast from Kilimanjaro!

Just learned that Alpine Ascents has a Cybercast that will be updated regularly when we’re on the mountain. You’ll be able to see how we’re doing – amazing technology! Use this link below and thanks for your support and love.

LINK TO ALPINE ASCENTS KILIMANJARO CYBERCAST
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Be Humble and Hopeful.

Tomorrow, I leave for Kilimanjaro. This is a trip that I’ve been planning for decades, signed up for in 2019, endured 3 cancellations due to Covid and am finally embarking on tomorrow.

Here I go!

It is finally happening – 3 years, countless miles of hiking and workouts. I have had the dream to climb Kilimanjaro from my early days at Starbucks when my colleagues and I explored the Cascades and I caught the mountaineering bug. I’ve watched with excitement as a number of my friends have taken this adventure, and I’m thrilled that I am finally able to go. Covid delayed the trip, but didn’t dampen my energy and spirit.

My goal is to climb to the summit and waive the JDRF flag – 19,340 feet, and I’m working to raise $19,340 for JDRF’s fight to end T1D. THANK YOU to those that have already contributed. I’m grateful for your support!

As I’ve shared in the past, my husband Greg and son Wes both live with T1D and I see the challenges the disease poses first-hand. Last year, JDRF partnered with other leading organizations to launch the T1D Index – and we now know the impact of this disease on communities across the globe. In Tanzania, where I’ll be, a person living with T1D loses 49 healthy years of life. 49! We are working with our partners to ensure people with T1D get diagnosed, have access to insulin and test strips, and we can save and extend the lives of those affected by this dangerous autoimmune condition.

Please join me in helping fund this important work at JDRF.

I’ll also be waiving the TFW Flag on the top – my incredible Bainbridge Island home and my Training for Warriors family. Along the way, I have built friendships and rekindled my understanding of grit and determination in overcoming mental and physical obstacles.

My plan is to post updates and images from my trip, and share my journey along the way if I can. I’ll be on an 8 day Lemosho route – you can see the details here. I’m excited to finally get to work with Alpine Ascents for this journey.

My colleague at JDRF, Katie, sent me a bracelet in the mail as I was preparing to climb. It is LOKAI bracelet that contains the best of life lessons – sometimes you’re on top, stay humble. Sometimes you’ve hit a low, stay hopeful. This is how I will approach each step of the next few weeks: with this bracelet on my wrist, hope in my heart, and the mindset of humbleness to keep me grounded. I’ll wear this bracelet with my Hannah tattoo, and will look to feel her in each sunset. I also have the same bracelet for Mimi to wear so that we can think of each other when we look at our bracelets across the world from one another.

Thank you for your support!

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Hannah Hummingbird

Happy Hummingbird, Louie Gong artist*

Monday, 10 years have passed since Hannah transformed from baby to hummingbird. Our sweet little girl, who forever made a mark on our lives, brought more grief and more joy than I thought was possible with any one soul.

I wasn’t able to write about this until now…I hadn’t felt the stirring that I usually do when we’re hitting a milestone or anniversary. It wasn’t until I heard Maren Morris interviewed on NPR’s Morning Edition this morning that I knew I was ready to process this enormous moment. As I laid in bed listening to the story, I recognized her dance song “the Middle” – a song we hear all of the time on pop radio. One of the songs that Mimi sings along to at the top of her lungs. But I didn’t know about the artist, and I hadn’t heard her song “Hummingbird”. I couldn’t have written lyrics that speak to why we believe Hannah comes to us as a hummingbird any better than this. Oh, our sweet baby girl.

We’ve had 10 years to process our loss, grow from the experience, and continue to move forward. And yet this child’s mark on our lives hasn’t faded. In the interview, Maren is asked about how she stays humble. She shares “I think it means you’re the closest to your compass that you’ve ever been. It’s not for public consumption of how relatable you are. It’s: How in touch are you with yourself and your loved ones? Like, the people that know you the closest?”

Our life with Hannah is the most humbling experience I could ever imagine.

Sweet Hannah, we love you. We honor you. And like the song says, “hummingbird, hummingbird, now your heart beats in me.” Always.

Maren Morris – Hummingbird

You’re Mexico in the Winter
You’re Tennessee in the Spring
You come and go like a whisper
Leaving me the most beautiful dream

Hummingbird, hummingbird
You’re the sound of these strings
Hummingbird, hummingbird
On my skin rest your wings
I’ll hold you in my loving arms
But I’ll let you fly free
Hummingbird, hummingbird
Now your heart beats in me

I’ve been waiting all my life for your colors
And I’ve been watering the flowers while you’re gone
I’ve been looking out the window for a glimmer
Not knowing you’ve been with me all along

Hummingbird, hummingbird
You’re the sound of these strings
Hummingbird, hummingbird
On my skin rest your wings
I’ll hold you in my loving arms
But I’ll let you fly free
Hummingbird, hummingbird
Now your heart beats in me

Ooh, I’ll never try to cage you
Ooh, take the sky that God gave you

Hummingbird, hummingbird
You’re the sound of these strings
Hummingbird, hummingbird
On my skin rest your wings
I’ll hold you in my loving arms
But I’ll let you fly free
Hummingbird, hummingbird
Now your heart beats in me

Hummingbird, hummingbird
Now your heart beats in me

Play “Hummingbird” on Amazon Music Unlimited (ad)
  • *Louie Gong, Nooksack artist. https://eighthgeneration.com/blogs/inspired-natives-project/louie-gong-nooksack

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The Keys

Today, Hannah turns 11. It is surreal to think that this child, who changed our lives in such profound ways, joined us more than a decade ago. Oh, how she continues to play an important role in our lives.

I have been reading Glennon Doyle’s latest book “Untamed” this week. I didn’t like her previous books – they felt forced and I didn’t connect with her approach to life, marriage, self-harm. “Love Warrior” was a fast read, but it wasn’t something I could connect with. But with “Untamed”, I am left thinking about our life, and how important Hannah is to me. As I’ve said before, Hannah is my greatest teacher. I understand Glennon’s thoughts when she says there are 4 keys to building our lives:

  1. Key One: feel it all
  2. Key Two: be still and know
  3. Key Three: dare to imagine
  4. Key Four: build and burn

I won’t share the details of these messages, but the overarching theme is trust yourself; listen to yourself; allow yourself to dream; and know that you can build something, it can burn down, and you are resilient and will rise again. These are the lessons I learned from Hannah. These are the keys that let the universe in.

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The Opposite of Fate

I’m so excited to share that as of earlier this month, I’m officially the National Director of Leadership Giving with JDRF! I am thrilled that I get to bring my personal and professional experiences together to work on finding a cure for Type-1 Diabetes (T1D).

The journey over the past 15 months has been a rocky one, with Covid impacting every area of our lives (and those of the lives of everyone we know). While my career transition included a lot of heartache, I was able to immerse myself in being home with Wes and Mimi.

Each day (at first with 100% online learning, then later with hybrid in-person school) I was Mimi’s learning partner. We read together, did math together, played outside together…time I wouldn’t have had otherwise with this amazing little person. Her first-grade year was nothing like we imagined but was filled with fun and adventures that we will treasure. Similarly, for Wes, his freshman year allowed us to see how strong he is – as a student, an athlete, and a young man. He amazed me with his commitment to doing well in his classes, and not once did he miss a zoom class, assignment, or check in with his teachers. He showed up and tried hard. I’m very proud of my kiddos for all that they accomplished during a crazy, uncertain year.

For me, I had the chance to examine what matters most. As I started thinking about my next career, I realized that I wanted to take the time to really understand my values, strengths, and vision for what I wanted in my work. I reached out to Linda Glass, a former Starbucks colleague and now an amazing coach (who often works with people like me who are exploring big career moves). Linda’s process allowed me to take inventory of my life, my work, and where I wanted to go. It prepared me for the job search process and reinvigorated my sense of purpose. And it helped me navigate the rocky waters of finding my dream role. I’m grateful to Linda and her process – it worked wonders!

As I was deeply steeped in my job search, I watched an amazing film about the author Amy Tan, “Unintended Memoir”. In it, she talks about her life, and shares information about her book, “the Opposite of Fate”. I couldn’t stop thinking about this idea – that it isn’t fate that drives us, but something so much deeper. I thought of our life with Hannah, and with T1D and the role it plays all day, everyday with our family. As described by a review of Amy Tan’s work, they summed it up:

What is The Opposite of Fate? For Amy Tan, the opposite of fate is “choice, chance, luck, faith, forgiveness, forgetting, freedom of expression, the pursuit of happiness, the balm of love, a sturdy attitude, a strong will, a bevy of good-luck charms, adherence to rituals, appeasement through prayer, trolling for miracles, a plea to others to throw a lifeline, … the generous provision of that by strangers and loved ones”, and, above all, “hope”.

It is this hope that has driven me through the past decade…from the heartache of loss, to the joy of birth, and through all the highs and lows of being human. I also believe firmly that it is this hope that has landed me exactly where I need to be for my work – partnering with donors and scientists to create a world where no one has to worry about T1D.

From improving lives to accelerating cures, JDRF is on a mission and I am thrilled to be a part of creating a future without T1D. I know it isn’t fate that brought me here. HOPE. It is hope.


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Lessons from our Children

As I sit in my home office working, throughout the day I hear the thumps and dribbles of our son outside at the hoop practicing basketball. I’ve watched his vertical jump double, and his constant attention and practice now means that his left-handed layups are as good as his right-handed ones. Practice. Perseverance. Resilience. All of those qualities that we value in our teams at work are also what has been growing in our kids through this year of uncertainty.

Just before the pandemic hit, Wes was selected to be part of the inaugural class of www.boundlesswa.org. He had never applied for anything, and was proud of himself for writing the essays and completing the interview process. The program has had to transition to keep kids safe, but it has still honed self-awareness and deepened what it means to be a leader. Grateful mom is learning, too.

BI boy receives honor from state Senatewww.bainbridgereview.com • 2 min read

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